Benjamin made it through the first 24 hours like a star. The surgeon had said he might get worse before he gets better...but after surgery Benjamin just stablized. He had a good night last night and a good quiet day today. His heart rate was between 185-195 yesterday and today it has been between 135-145. The nurses have taken away alot of the meds to stablize his bloodwork because it has been great. His hemoglobin is up, his platelets are up...and he is being weaned off the medication to elevate his blood pressure. There is also talk of taking him off the oscillator tomorrow and putting him on a conventional ventilator. He is doing most of the breathing on his own. He is definitely in pain though. His poor little belly is so tender. He is fine while sleeping, but any little stretch and he is in obvious pain. He is on a lot of medication to keep him comfortable. He has gotten rid of some of the fluid built up in his body, but it will take time because he is not moving so it still builds up. He definitely looks puffy in his pictures. We're taking things an hour at a time...we are so happy with his progress...but very cautious about getting our hopes to high..I know that sounds bad, but its been so scary that we can't help but be cautious. I am thankful for every minute I can be with him.
5 comments:
I so glad to hear he is stable!! He's an amazing little guy! Keep on fighting Benjamin!! You have a wonderful family waiting to bring you home!!
What a trooper. Love and hugs :)
He is so sweet :)
My nephew Jackson (25 weeker)had necrotizing (same thing as Benjamin) He had 2 or 3 bowel surgeries . He is now a healthy busy 3 year old.
I am praying for baby Benjamin, :) Stay strong little guy :)
Tan5kids
It sounds like the surgery was a step in the right direction! I hope the next hours go by with more improvements. As you said, one hour at a time!
we're sending our prayers for you and jon shannon, it's a hard road, but once the worst is over, it's amazing to see what such a little miracle can accomplish :) Lily was born at 31.5 and had quite a few issues, but is doing great now, keep your heads up and if you need anything, call, even if we aren't the best of friends, I have been through the shebang! Yvette
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