The same

Everything is pretty much the same.. I am happy that I really don't have much to tell you. Benjamin had a great day. We had a chat with one of his doctors about a few things. I'm worried about his body and all that he is getting right now. There is a concern for one on the fluids he is on..its a nutrition component that he needs to be on to grow, but it is also hard on his liver. The doctor did say that Benjamin may start to turn yellow as time goes on. They have been checking his levels and they are low for jaundice right now, so I am thankful for that..but as the days pass there is an increase risk for liver damage. But the doctor reassured me it is low..but it still worries me. The surgeon is supposed to come by next week..we're trying to pin her down so we can be there for that. Hopefully then we'll have an idea of when the next surgery will be. We were told that he can start feeding as early as 48 hours after his next surgery, but it will be a long slow process. One day he may do well with feedings, the next day not so much..so we have to be prepared for that. There is always a chance scar tissue could build up and narrow the passage through his intestine and he may need another surgery to help that. I try not to worry about all that right now.

I got to give Benjamin a sponge bath tonight..which was nice. Its nice to be as involved as possible. He lost a little weight...but he could still be losing some fluid from being sick. My grams to pounds conversion is a little off. Last time he wasn't 3lbs 8oz...but 3 lbs 13 oz. So its exciting to be getting close to the 4lbs mark. Hopefully next weigh in he'll be up again.