What a day! We have been preparing the last few days for the big move....but today we found out they don't have a bed yet. So if they don't have one by tomorrow night Benjamin will stay where he is and surgery will be postponed. The surgeon came in today and expressed her concerns about everything. She talked with the other surgeon who did Ben's last surgery and they both agreed that things inside should be well enough to proceed if a bed comes available. But because of the major trauma that went along with his last surgery she could open him up and not be able to do anything and just have to close him up again. If that were the case she would leave him for another 2-4 weeks and try again. As more time passes his intestines will become a little "looser" and less stuck. So there is a benefit to waiting. But they also have discontinued his feeds to try to heal his tummy and clean out his intestines in case he still does go tomorrow. Even if his surgery is postponed I think they may keep him off feeds to try to maintain his skin. The not so great part is that he'll be really hungry and his TPN will go up and it will be continous. So he'll probably become more jaundice again. The encouraging thing is that after a week and a half of cycling his bilirubin dropped significantly and he was back to a normal colour. I'm encouraged by that, his liver seemed to recoup well. So Jon and I believe that if a bed comes available by tomorrow night then God is telling us its time...if it doesn't God is telling us to hang on a little longer. We find comfort in that.
Today is Benjamin's due date. We brought cupcakes for the nurses today! The girls are upset because they think its not fair that he has 2 birthdays!! But I think he deserves 2. Anyways, we'll keep you posted. We need lots of prayers for strength and comfort.
Monday, September 13, 2010
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2 comments:
I'm hoping they'll have a bed for Bemjamin! I'm praying for him everyday. ((hugs))
Dear Shanon & Jon: Have been following Baby Benjamin's blog all along. He is an amazing little boy! My love & prayers continue to be with you. Continue to trust our Lord, He will keep you strong.
Love Aunt Cath
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