100th day...

I can't believe we've been in the hospital 100 days...Day 100 wasn't great. Yesterday the nurse noticed his resperations would increase as he would feed and I noticed today that Benjamin seemed to be working a little hard with his breathing. So the doctors decided to do an x-ray to see if there was anything going on. We they found out that Benjamin has aspirated while bottle feeding and now has some in his lungs. They put him back on oxygen and that helped. He seems to working a little hard, but not breathing as fast as before. So we're hoping that with a few days of just tube feeds that it will clear up on his own. They slowed feeds down and put him on continous feeds so his full belly doesn't put to much pressure on his lungs. When I left today he was settled well. Tomorrow they will most likely put in a new central line. They will have to knock him out for that, but since his feeds have slowed down, he needs it for nutrition. I have anxiety about it because there are risks. But he has had 2 without any issues so we're confident that this will be the same. A good thing today was that Benjamin's hand is much better. He has a black spot on the top of his wrist that is dead tissue, but the plastic surgeon expects he'll end up just with a scar. They don't anticipate any major damage. His tummy seems to be doing well. Everything seems to be digesting well and Benjamin is pooping well :) So today was another rollercoaster...its so disappointing that things aren't going smoothly, but this is how it has always gone. Benjamin really isn't that far off from home..so after this I hope its smooth sailing. .. We definitely still need more prayers..I feel defeated today and like the day he comes home will never arrive.