A huge day!!!

Today has been a milestone day for my little man. He is now completely off his oxygen!!! Its so nice to see his beautiful face. All that's left is his NG tube for his feeds. Some kids become a little freaked out when the canulas come off and Benjamin had a little episode yesterday morning when we tried to take them off so we put them right back on. But the nurse today was a little more sneaky. She took off the end attached to the oxygen at the wall. So his prongs were in all day with no flow going through. Finally tonight when I got to the hospital the prongs were off. Benjamin has never been off his oxygen so this is huge. We are thrilled. It was definitely a worry especially with his murmur. So he's been off for 12 hours without an issue. Hopefully his night is well and he can stay off until his next surgery. We are still working on his skin. It seems to be a bit better. Its still red and sore looking..essentially its really bad diaper rash... So we're going to meet with the surgeon on and the stoma care team from LHSC. There are specialized nurses there..if worse comes to worse we can have transferred to vic. We love our nurses and doctors at St.Joes, but if they can get things under control at vic. we might opt to go there. So we'll see what this week has to bring.
Today was a great day...an answered prayer. God is so good.