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Tuesday, March 29, 2011

Today was a busy day. We met with the surgeon this morning. She was very happy with Benjamin. We decided to set surgery for late April. We are now just waiting for the phone call with pre-admit & surgery dates. The doctor said they surgery may take up to 3hrs. She won't know until she gets in there..We're hoping that it will be a relatively easy fix, but there is no way to know until she opens him up. He will most likely be in the hospital for a week. I was hoping it would be less. But he'll be on morphine afterwards and need to be weaned from that. Obviously for pain management he needs to be there and its the best place for him. I'm thankful that the new floor is open and it will be easier for me to stay with him. I'm having so much anxiety. He is so much older and aware and it breaks my heart that he has to go through this again. But in the grand scheme of things this will be minor compared to his other issues. I am looking forward to closing this door though...moving on and finally finishing this chapter in his & our story. We also saw the asthma doctor today. She was very happy with Benjamin as well. We reduced his inhaled steriods by half. So that's great. We're hoping for the summer he'll be off that one all together, but we may need to restart in the fall. He still sounds wheezy, but she said it was probably more of a prematurity thing. So today was good. We also donated blood. I still encourage everyone to get out there and donate! You could save a baby like Benjamin.

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