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Saturday, September 18, 2010


Benjamin had a pretty good night last night and day today. I spent the night at the hospital with him again. Its hard to leave him wit strangers...I felt a bit better today because I knew one of the nurses on. Benjamin was extubated today and did great. I think the oral intubation tube was driving him crazy. He seems to have a highly sensitive gag reflex and the tube sent him over the edge. Every time he moved he'd gag his heart rate would drop and the monitors would go off...and they are loud over in the PCCU. So I am so happy he's off the ventilator. He's on low flow with just a little oxygen. I think by tomorrow he'll be off completely. He's so much happier. His pain medication has been cut in half which is good...as long as he's happy. He is the healthiest kid in the PCCU which is a nice change...they were going to move him to the 7th floor, but the surgeon came in and asked them to keep him one more night...so I think tomorrow morning he'll be moved. As long as everything comes back good from his dye test on Monday feedings should start shortly after. It could be a slow process because the necrotizing can affect the total bowel function even though the actual diseased parts are gone. So we just have to wait and see. Benjamin is puffy today, but not to bad..his belly looks pretty good..the doctor was able to close the entire incision. So so far so good. Thanks for all the prayers..!!!

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